Vertex Cystic Fibrosis Patient Resource Center
Cystic Fibrosis Care Starts with YOU.
Maxor Specialty provides best-in-class care for patients with Cystic Fibrosis. Our long-standing history of Cystic Fibrosis expertise goes hand in hand with our relationship with Vertex, bringing healthcare and innovation together. We continuously work with Vertex to bring new limited distribution drugs to Cystic Fibrosis patients like the following:
TRIKAFTA is a prescription medicine used for the treatment of cystic fibrosis in patients aged 2 years and older who have at least one copy of the F508del mutation in the cystic fibrosis transmembrane conductance regulator (CFTR) gene or another mutation that is responsive to treatment with TRIKAFTA.
KALYDECO is a prescription medicine used for the treatment of cystic fibrosis in people aged 1 month and older who have at least one mutation in the cystic fibrosis transmembrane conductance regulator (CFTR) gene that is responsive to KALYDECO.
SYMDEKO is a prescription medicine used for the treatment of cystic fibrosis in patients age 6 years and older who have two copies of the F508del mutation, or who have at least one mutation in the CF gene that is responsive to treatment with SYMDEKO.
ORKAMBI is a prescription medicine used for the treatment of cystic fibrosis in patients aged 1 year and older who have two copies of the F508del mutation (F508del/F508del) in their CFTR gene.
Vertex GPS™: Guidance & Patient Support
Wherever life with cystic fibrosis takes you, Vertex GPS has the tools and experience to support you at each step of your Vertex treatment journey—from navigating insurance to managing day-to-day stress to planning for life’s changes.
Educational Resources
Cystic Fibrosis Foundation
The Cystic Fibrosis Foundation is the world’s leader for a Cystic Fibrosis cure. This voluntary, non-profit organization has a mission to support the search for a cure of Cystic Fibrosis and improve the quality of life for those with CF.
Cystic Fibrosis Research Institute
This non-profit organization funds innovative research and offers education, advocacy, and psychosocial support to the cystic fibrosis community.
CF Source
CF Source helps you learn about Cystic Fibrosis – what it is, how it impacts the body, how it’s treated, and what you can do to manage your disease.
Everyday CF
Everyday CF offers information about living with CF at different ages and stages of life. Everyday CF provides information about nutrition, physical activity, maintaining a healthy mindset, going to school and college, and transitioning from childhood to adolescence and young adulthood.
CF R.I.S.E
Helps people with cystic fibrosis gain the knowledge and skills they need as they grow up to more independently manage their cystic fibrosis.
Cystic Fibrosis Engagement Network
Serves as a leading educational and advocacy organization focused on policy matters impacting cystic fibrosis patients.
Emily’s Entourage
A non-profit organization that raises money and awareness to help find a cure for rare mutations of cystic fibrosis.
Financial Resources
HealthWell Foundation Disease Funds
The Cystic Fibrosis Fund through HealthWell is designed to assist eligible people living with cystic fibrosis with cost-shares associated with FDA approved cystic fibrosis specific treatments and some related treatments.
CF Foundation Compass
Compass is a personalized one-on-one service that provides support to people living with cystic fibrosis and their families. Your case manager will help with challenges like seeking financial assistance for medical care and other living expenses, troubleshooting insurance coverage issues, and can answer questions related to work, school, and disability/government benefits.
Boomer Esiason Foundation
This scholarship program was created to provide financial assistance to students in the cystic fibrosis community who are pursuing higher education opportunities.
The Bonnell Foundation
This foundation helps individuals with cystic fibrosis with day to day living expenses. They also educate parents and find a cure for cystic fibrosis.
What is Cystic Fibrosis?
Cystic Fibrosis (CF) is a rare, genetic disorder that is passed from parents to children. It is caused by inheriting two defective (or abnormal) copies of the gene cystic fibrosis transmembrane conductance regulator (CFTR) protein. This mutation makes mucus and other secretions much thicker and difficult to clear, which creates blockage and obstructs vital organs. More than 30,000 people in the U.S. are living with cystic fibrosis and around 1,000 people are diagnosed with CF each year.
To learn more about cystic fibrosis, download our Cystic Fibrosis guide or read more on our latest blog CF blog posts below.
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Dedicated Cystic Fibrosis Pharmacy Team
P: 1 (800) 658-6046 | F: 1 (800) 791-7851
